Narrating the new predictive genetics : ethics, ethnography, and science / Monica Konrad.
"This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confide...
I tiakina i:
Kaituhi matua: | |
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Hōputu: | Pukapuka |
Reo: | English |
I whakaputaina: |
Cambridge, UK ; New York :
Cambridge University Press,
[2005]
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Rangatū: | Cambridge studies in society and the life sciences.
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Ngā marau: | |
Urunga tuihono: | Contributor biographical information |
Whakarāpopototanga: | "This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and the use of information by family members and other third parties. Drawing on extensive ethnographic research with families affected by Huntington's Disease and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services."--Jacket. "This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and the use of information by family members and other third parties. Drawing on extensive ethnographic research with families affected by Huntington's Disease and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services."--BOOK JACKET. |
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Whakaahuatanga ōkiko: | xii, 203 pages ; 23 cm. |
Rārangi puna kōrero: | Includes bibliographical references and index. |
ISBN: | 0521833140 9780521833141 0521540666 9780521540667 |