Ethics and newborn genetic screening : new technologies, new challenges / edited by Mary Ann Baily and Thomas H. Murray.
"The United States has the first and the farthest reaching newborn genetic screening program in the world. Originally intended to rule out genetic disorders in infants, the program is now under pressure to make use of advanced technologies and new medical knowledge to screen for adult-onset con...
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| Other Authors: | , |
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| Format: | Book |
| Language: | English |
| Published: |
Baltimore :
Johns Hopkins University Press,
2009.
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| Subjects: | |
| Online Access: | Contributor biographical information |
| Summary: | "The United States has the first and the farthest reaching newborn genetic screening program in the world. Originally intended to rule out genetic disorders in infants, the program is now under pressure to make use of advanced technologies and new medical knowledge to screen for adult-onset conditions, identify trait carriers, and evaluate genetic predispositions to disease. The contributors to this provocative collection study the impact of these changes on the program and offer guidance to professionals, policy makers, and the general public. ; Experts from the fields of bioethics, genetics, pediatrics, public health, health policy, law, and political science identify and analyze four social and ethical issues critical to newborn screening policy: the distribution of costs and benefits; information, consent, and privacy; consultation and decision making; and race, ethnicity, and socioeconomic status. In the process, the contributors capture the difficulties of trying to forge ethical public policy at the intersection of parental concerns, new technologies, and economic interests.; Contributors: Andrea Bonnicksen, Ph.D., Northern Illinois University; Jeffrey R. Botkin, M.D., M.P.H., University of Utah; Ned Calonge, M.D., M.P.H., Department of Public Health and Environment, Denver; Toby Citrin, J.D., University of Michigan School of Public Health; Ellen Wright Clayton, M.D., M.S., J.D., Vanderbilt University; Jannine De Mars Cody, Ph.D., University of Texas Health Science Center; Anne Marie Comeau, Ph.D., University of Massachusetts Medical School; James R. Eckman, M.D., Emory University School of Medicine; Scott D. Grosse, Ph.D., National Center on Birth Defects and Developmental Disabilities; Bruce Jennings, M.A., Yale School of Public Health; Donna E. Levin, J.D., Massachusetts Department of Public Health; Michele A. Lloyd-Puryear, M.D., Ph.D., U.S. Department of Health and Human Services; Marie Y. Mann, M.D., M.P.H., U.S. Department of Health and Human Services; Karen J. Maschke, Ph.D., The Hastings Center; Stephen M. Modell, M.D., M.S., University of Michigan School of Public Health; Virginia A. Moyer, M.D., M.P.H., Baylor College of Medicine and Texas Children's Hospital; Lainie Friedman Ross, M.D., Ph.D., University of Chicago; Joseph Telfair, Dr.P.H., M.S.W., M.P.H., University of North Carolina at Greensboro; Steven M. Teutsch, M.D., M.P.H., Merck & Co., Inc.; Bradford L. Therrell, Ph.D., University of Texas Health Science Center; Benjamin S. Wilfond, M.D., University of Washington."--Publisher description. |
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| Physical Description: | xvi, 354 pages ; 24 cm |
| Bibliography: | Includes bibliographical references and index. |
| ISBN: | 0801891515 9780801891519 |